Her Instagram shares inspirational quotes, stories from other people with PH, along with healthy recipes and tips. I thought I would share the post she asked me to write for a segment she runs called Warrior Wednesday, in which a person with PH shares a little about themselves.
Please follow PH_postivevibes on Instagram to find more Warrior Wednesday posts, along with daily motivation!
I was diagnosed with stage 3/stage 4 IPAH on Christmas Ev 2013 after a RHC. There was no question about it, I was dying. If I wasn’t diagnosed when I was I probably wouldn’t have survived through the month. Within a matter of 3 months I went from a healthy 25 year old who had started an amazing job managing an office at a university, to someone who was bed ridden.
|At the busy bakery I worked |
at before I got sick
I was sick, disabled, and I was on oxygen 24/7. I could no longer get dressed by myself, make my bed, or shower. My dad would have to carry me up the stairs in our house. My independence and my ability to be active were gone. I was devastated (I guess I still am,) and I was angry. However, I knew that there are exceptions to everything. I also know how flawed statistics are. So I allowed my anger to ignite me in positive ways. I brushed the dust of my Wii Fit and started doing yoga as soon I was able to stand again. I did this everyday for 5 minutes, then 10, then 20. Once it got too easy I would move on to something else. Now I can do those simple yoga moves without oxygen- it’s amazing to think that I used to have to do it on 4 liters of oxygen per minute.
Once I felt brave enough I joined some online PH support groups. I noticed that there were people who have had PH for over 10-20+ years and were still going strong. I thought “Wait a second- my doctors and Google didn’t tell me about these people!” I soon thought that these kind of stories and information should be available. From there I started my blog ‘The PHight or Flight Project.’ There is a segment on my blog called ‘PHighter Friday’ where someone with PH talks about their life after diagnosis. There are over 50+ stories from people with PH who have beaten all sorts of statistical odds, such as being a long term survivor, adopting, returning to work, participating in marathons, and improving dramatically after diagnosis.
|Baking for the first time since diagnosis (over a year and half later.) |
I now only eat and bake gluten free items.